Providing support for the warriors, their families, and the research teams that fight tirelessly to beat pediatric brain cancers.
Kinsley Adelynn Wilkerson was diagnosed at 3 years old with a rare and aggressive brain cancer known as Atypical Teratoid Rhabdoid Tumor (ATRT) in September 2018. When Kinsley was diagnosed, she seemed like an otherwise healthy little girl, but was complaining of sporadic neck pain which had progressively worsened over the prior six weeks. The culprit was a 6cm tumor in the frontal lobe of her brain. Kinsley spent more than half of her life fighting cancer with treatments spanning brain surgery, aggressive multi-agent chemotherapy, high-dose chemotherapy with autologous stem cell transplant, proton radiation (both focal and CSI), Gamma knife radiation, an EZH2 inhibitor, and multiple antibody and immunotherapies. Kinsley lost her nearly five year battle with brain cancer in July 2023. She was an absolute warrior and fought alongside her mother (Anjali), father (Robert), sister (Avila), and brother (Ryland). Kinsley's story, bravery, and infectious laugh inspired many people during her too short life. She had a unique ability to inspire change from both those that knew her well and those who only knew of her spirit. Her supporters proudly became "Kinsley's Unicorn Squad" and did everything they could to support Kinsley in her fight. In her honor, Kinsley's Unicorn Squad is continuing to grow and fight for those affected by pediatric brain cancers.
Our mission rests on three pillars:
Research - Sadly, only 4% of the entire National Cancer Institute R&D budget funds pediatric cancer as a whole, and the amount is much smaller for the rare brain cancers such as ATRT. Kinsley's Unicorn Squad funds basic research through organizations such as PNOC to help accelerate cures and improve outcomes for children affected by brain cancers.
Warriors - The children that fight brain cancer are absolute warriors and are asked to relinquish their bodies to the many providers, procedures, and treatments required to fight their disease. They deserve much more support than they receive and Kinsley's Unicorn Squad seeks to alleviate the burden through funding of Child Life projects across the US.
Families - Support for these warriors is primarily delivered by immediate family members whom put their own lives on hold to join the fight. Parents and siblings often sacrifice everything to achieve one goal - to make the child well again. Kinsley's Unicorn Squad seeks to provide support to families with a primary focus on mental health services, caring for "super siblings", and delivering opportunities to make beautiful memories with their loved ones.
None of this is possible without support from those who share our passion. An easy way to show support is to follow us on Instagram and Twitter to help spread awareness of this awful disease. But financial support is also greatly appreciated. Even small contributions to Kinsley's Unicorn Squad can make a world of difference to a child currently fighting brain cancer and can help future cancer warriors from ever having to suffer as much as Kinsley did. Monthly or annual contributions will allow us to grow Kinsley's Unicorn Squad and tackle more projects for more families than ever before. Please consider making a donation and joining us in this journey.